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@grandpa4

I have had PMR for over a year. Started with 20mg Prednisone. Down to 2.5 for second time. Tapering not going as planed. My #'s went back up for a second time to the beginning.

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Replies to "I have had PMR for over a year. Started with 20mg Prednisone. Down to 2.5 for..."

Hello @grandpa4, Welcome to Connect. A lot of us PMR old timers can relate to your journey with PMR. When it comes to PMR, that old quote "the best laid plans of mice and men" always comes out. Each of us are a little different when it comes to tapering but the one thing I think we all have in common is slow and easy wins the race. My rheumatologist suggested a tapering plan with the caveat that I listen to my body and only taper down on my own schedule. He recommended I keep a daily log with my pain level of 0 to 10 along with my how much prednisone I was taking that day. Then when it came to taper if my pain level was too high I would go another week or so to see if it came down. If it did come down, I would taper down to my next lower level. If not I tried to adjust by going up half of my last taper down so as not to go all the way back to the previous dose. My pain threshold for tapering was anything below a 2 but that is subjective for each of us.

Do you keep a daily log of how you feel, new symptoms, etc?

I have had 5 covid shots, the last one was in Sept 2022. A month later I
was diagnosed with PMR. All my Rheumatologist said to me was "we are all
guinea pigs". I believe I always had PMR but it manifested itself from the
shots. Can't look back. Moving forward.

Upon my diagnosis, I was initially prescribed 20 mg daily, to taper to 15 mg a week later. That did not work, but since then, my rheumatologist had me split my daily dosage. At that point, he got me to 30 mg daily, 20 mg in morning, 10 mg at night, and held me there for either 4 weeks or a month. Then I tapered by 5 mg daily every 2 weeks until I got below 20 mg, then 2.5 mg daily every 2 weeks until I got to 10 mg, then 1 mg daily every 2 weeks until I get to 0 (hopefully mid February; I'm current down to 3 mg daily). Maybe splitting your dosage may help.