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PMR Taper and pain

Polymyalgia Rheumatica (PMR) | Last Active: May 30 12:19pm | Replies (63)

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@lizward46

After I was diagnosed with PMR (May 2023), I had a dexa scan which indicated that my osteopenia was getting worse. Because I was taking prednisone (along with mega calcium, vit D and vit K), doc wanted me to begin taking fozamax as a preventative measure. I am on a low dose (35 mg) once a week. The hope is that my osteopenia can be stabilized. So far I have had no side effects. I will have another bone scan in 6 months to determine how to proceed. Right now I am tapering off prednisone (4 mg at present), but I don’t know if my body will tolerate a complete cessation of prednisone. I am 77, in good health otherwise, and don’t want to live with pain or possibility of stress fractures. I am trying to take this condition one day at a time. Every morning when I get out of bed without pain, I am happy. Liz Ward

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Replies to "After I was diagnosed with PMR (May 2023), I had a dexa scan which indicated that..."

Fosamax....well that is hopeful. I'm hopeful that my body can get down to zero prednisone....I'm about to go to 2.5 mg...I wish I never took it but I had complete relief the same day I took it almost 2 years ago. The highest dose I was ever on was 20mg and only for 2 weeks and had no problems until I went below 7 mg, and then not too bad. I have pain in shoulders and biceps and upper thighs and knees which makes it hard to do some things but I force myself to walk and exercise when I can. I guess you are going to get something when you reach our age..I just want it to go away faster! Thanks for your info! Hope you can get off of it soon. Riji