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Tired of the gaslighting

Autoimmune Diseases | Last Active: Apr 30 10:33pm | Replies (189)

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@dlydailyhope

I can totally relate with where you are right now! Everything you said I have experienced, too. You are right, you are your best advocate and know your body best. I, too, have gone to doctors for many years trying to get help for my pain and declining health. They tell you, especially women, that it is in your head so they can just prescribe you anxiety/depression medication and send you away. I have also seen after care notes that document things were reviewed and discussed with me when they weren’t at all! Fraudulent record keeping! I have fired a couple doctors who would not help or listen to my symptoms or who put in my record “hypochondriasis” when all I wanted was answers and help to feel better. I do feel better now, not 100%, but better after 7 years of seeking answers and not settling until I got help. It is a lot of work, $$$, and time but it is our lives on the line. After all of the runaround, I was finally diagnosed by different doctors) with the following (in order): iron deficiency, small fiber neuropathy through punch biopsy, hearing loss, cervical and lumbar severe spinal stenosis, degenerative disc disease, radiculopathy, osteoarthritis, alopecia areata, thyroid autoantibodies in bloodwork and inflammation, cervical spondylitic myelopathy (spinal cord compression making it hard to walk and not drop things plus had daily headaches), thyroid nodule/Hashimoto's thyroiditis/micro cancer/hypothyroid, breast implant illness (implants removed), and gastritis and esophagitis (waiting for endoscopy biopsy results). I, too, had a really bad case of mononucleosis as a teen (now in my 50s) and understand EBV and other viruses can cause many health problems later in life. I am now on 100 mcg levothyroxine for my thyroid, 40 mg Fluoxetine (Prozac) for anxiety/depression (chronic pain), and now 20 mg Omeprazole for gastritis. Many other symptoms on my long list have reduced or gone away completely. There is hope!

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Replies to "I can totally relate with where you are right now! Everything you said I have experienced,..."

After reading your live, I felt like you were talking about me. I have everything you have except for the breast implants. In addition I have had and probably still do PMR and GCA. I am 81 and I, too had mono as a teenager with a relapse, which kept me in the hospital for three weeks. I do not know what to do. At this point. My arthritis is extremely difficult and painful. I live in Florida and I’m having a difficult time finding doctors that can help me. it is hard to get around now I use a walker and need to shoulder replacements. Where do you live? I also have head problems with lots of noise. I am looking to take an MRI of my head.

I suspect your previous implants has everything to do with your constellation of autoimmune symptoms. Kudos to the MD that told you to get them removed!