Hello @marct and welcome to the NET support group on Mayo Connect. I see that other members of Connect have responded to your post already. I certainly value their advice that you seek a consultation with a NET specialist. All three of the Mayo locations have NET specialists. Here is a link with information on obtaining a Mayo appointment, http://mayocl.in/1mtmR63. If for any reason, you cannot get an appointment at Mayo, here is a list of NET specialists worldwide. https://www.carcinoid.org/for-patients/treatment/find-a-doctor/ NET specialists have the greatest experience with treatments and are the best allies for any NET patient.

Making a treatment decision is difficult for all of us with NETs. I am a 20-year survivor of NETs and I've had three surgeries. Do you currently have a surgery date scheduled?