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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 18 hours ago | Replies (7067)
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@lorirenee1

@faithwalker Renee, I am seriously considering shutting off my DRG if yesterday's adjustment does not work. I am supposed to call my ABBOTT rep in a week, to let her know if I see any change in pain level, so I will respect her wishes. After a week, she told me to wait one more week, and see her again for another adjustment. I think at this time, I will just shut off. I am frightened, however. But logically, it is the only way of knowing this machine does anything. Also, I did not know the leads of the trial are different than the leads in the real deal. Terrible. This could explain why the trial helped, and the real deal does not. I will never know for sure. Lori Renee

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Replies to "@faithwalker Renee, I am seriously considering shutting off my DRG if yesterday's adjustment does not work...."
Faithwalker007 (Renee) | @faithwalker007 | Oct 7, 2020

If you turned off your SCS for longer than a week and you didn’t notice a change in your pain, then I’d say one of a few things are happening:
1. It didn’t work for you.
2. Your battery is not working or charging properly if at all.
3. You have a disconnection in one or more leads somewhere.
4. The leads have migrated or were not put in the right place.

Now the software is supposed to detect the malfunctions, however if it a partial or “short”, it may not if you cycles are still functioning.

As far as the placement? That is on the neurosurgeon.

I’m praying.

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bustrbrwn22 | @bustrbrwn22 | Oct 7, 2020

@lorirenee1 it is scary that they used something different in a trial than the real thing. I watched an interesting documentary about how manufacturers don’t really have to do much to get a device FDA approved. They simply tell the FDA it is based on a device that is already approved and then they are set to go. It sounds like there was a 20 year or so period starting in the 70’s that medical devices weren’t really being tested and easily approved so if you say your device is based on one of these the FDA approves the new advice. It just was posted on Netflix a week or 2 ago. Really makes you think.

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