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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 18 hours ago | Replies (7067)

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@faithwalker007

The trial is misleading in my opinion. They use a different type of lead (at least in my case) that produces a completely different result than the permanent leads they implant. It’s a simple case of apples and oranges.
Does the DRG SCSs work for CRPS? Of course. I’m a testament to that fact. The trial relieved almost 85-90% of my pain. In fact, I was planning to go back to work in my mind. Then I had the permanent SCS implanted and those dreams evaporated in the second it was turned on.
Do I get relief? Yes, 20-25%, maybe more on a good day. Is it worth it? Of course, it’s relief I can get no other way! It’s relief the opioids won’t give me. The Lyrica or Cymbalta I can’t take won’t give me.
So should anyone try a DRG SCS? Wow. Now that is a tricky question. It all comes down to risk vs reward. Is your pain management at a point it leaves you asking yourself, “Is this worth a shot?”
If the extra maintenance something you want and can do? Battery charging/changing, switching programs if and when pain levels warrant, dealing with hardware in your body when traveling, medical testing, etc.; Reprogramming as necessary; Changing hardware and inserted battery pack as required
The list is not extensive but it is a necessity and should be examined closely and with an extensive amount of forethought and prayer before undertaking such a life-changing treatment.
I knew my pain was not going to be able to be managed with anything other than opioids so my decision was almost a no-brainer. I had to try. Something. Anything. My results were not the greatest but acceptable.
Anyone else may or may not, hopefully may, have much more in the weapons cabinet to fight their pain.

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Replies to "The trial is misleading in my opinion. They use a different type of lead (at least..."

@faithwalker007 Wouldn’t it be easier to find/create a drug that takes care of this pain rather than all this nightmare of work you must go through? I think I just figured out the opioid/benzo conspiracy. All these operations and devices must cost a ton more than pain pills, don’t they? And because they don’t work in a lot of cases you keep trying some other surgery. It would be Interesting to find out the number of suicides because no one will help with the pain. I don’t think any reporting is done on that.

I’ll get off my whiney soapbox now.