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Internal vibrations/crawling

Neuropathy | Last Active: Jan 6 7:58am | Replies (23)

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@champton

Well John, I wonder if you have any ideas for me to try. I’ve responded here few times about my internal Vibrations. I’ve had them daily since Sept of 2020. Starting in my left foot and moving up to my knee then bam the other leg all way up to my upper waist area in just 2 months. I’ve had them faithfully for 3 yrs 4months now. Neurologist or my Neurosurgeon can’t figure it out. They say it’s spinal or a brain issue. I’ve had numerous MRI’s and CT scans n only thing they see is a cyst in my mid upper spine that could be preventing fluid from flowing through normally. It’s like a motor in my body 24/7. I wake up to it and I go to sleep with it. I try to figure ways to explain vibration, to a bubbling pot at my feet and I can feel the boiling like water rush through my body. But I don’t feel that water sorry, it’s just the motion I’m feeling from it. I’m sitting on this and can’t get cozy and I’m not able to even enjoy the vibration. This is miserable. My Dr just did another complete BW on me and I’m good cept for my Thyroid is still not balanced. So lowering dosage again. Got so low I lost a lot of hair. I lost well over 100 pds. My body feels like I’m racing but not getting anywhere. I’ve cried so many times on my family. Had brain scans. What us this vibration from? Why can’t Drs around here or an hour away like U of M hosp. Figure out what’s causing this ? I know I’m not the only one, I see many on here complaining of the same problem. I wasn’t doing anything when all this started. I was going to a Dr appt and started feeling it in my foot. I have had a spinal cord Stimulator before. I had it for RSD reasons put in 2007 and removed in May 21’. To me it’s the same vibration as having the stimulator still in me turned on full blast. Now if you or anyone you know has one of these then you know the same vibrations I’m talking about. My husband I know is tired of me whining about this, after all it’s been over 3 years now n nothing has been done to stop it. I just need some little hope that someone else having this and was cured or going through being on the right track. I need a little hope. I can’t deal with this any longer. I can’t do this anymore. Who is there can help get rid of these ? It’s same feeling from bottom of my feet to my upper waist. It’s a miserable life. Please send some encouragement my way. Thanks and God bless our Country!

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Replies to "Well John, I wonder if you have any ideas for me to try. I’ve responded here..."

@champton, I'm sorry to hear that you haven't found any relief for the internal vibrations. You said that MRI's and CT scans revealed you had a cyst on the mid upper spine area. I know you also mentioned the U of M hospital. Is that the University of Minnesota Medical Center hospital which is also a teaching hospital? Just wondering if it might be worth seeking help or a second opinion on possible causes of the internal vibrations including if the cyst could be compressing nerves in the spine.