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Pancreatic cancer recurrence: Anyone else?

Pancreatic Cancer | Last Active: Feb 7 2:54pm | Replies (63)
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@waltsocal

Morning, I'm relatively new to this site. It has been very helpful.

I had the Whipple procedure in June of 2023 - (9 out of 22 lymph nodes infected - 15% chance of surviving). I'm in the "waiting stage" until Feb 9th to see if there is a recurrence. I read the info on the CT, MRI and EUS. My oncologist seems to go with CT only. What are your thoughts on PET scan. It sounds like that is what they should be doing; along with the CA19 test.

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Replies to "Morning, I'm relatively new to this site. It has been very helpful. I had the Whipple..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 5 1:41pm

Hello @waltsocal and welcome to Mayo Connect. I really can't answer your question about the type of scan that is best, however, I would highly recommend that you consult with a Pancreatic Cancer Center of Excellence. At a facility such as this, you will get the best care.

Here is a link from the American Cancer Society website where you will find some good information about follow up and care,
https://www.cancer.org/cancer/types/pancreatic-cancer/after-treatment/follow-up.html#:
I would also encourage you to post this question to another Pancreatic Cancer support group on Connect. Here is the link,

--Introduce Yourself and Connect with Others
https://connect.mayoclinic.org/discussion/pancreatic-cancer-group-introduce-yourself-and-connect-with-others/
I'm also going to invite other members of this support group to share their experiences with pancreatic cancer, including @markymarkfl @spicerpa @sofee2022 @gardenlady1116.

I look forward to hearing from you again. As you are comfortable doing so, please share as to how are you feeling since your Whipple procedure. Has your appetite and eating changed much? Have you gained or lost weight?

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