I do remember talking to you Lori! I have a suggestion about your DRG. I turned mine off (involuntarily, I put my cell phone too close to it and it shut off) for 5 days or longer. If it truly isn’t relieving any pain, you’ll know it. If it is helping AT ALL, you’ll find that out too.
Like you, I have had mine reprogrammed over and over since it was implanted and never have reached the level of relief at the trial. It has not even given me the level of relief I would say I could actually “feel” or rank.
I was actually thinking of getting my paddle leads changed out until I ran my accidental shut-off experiment. It was at that time I discovered the Stimulator does give me relief- about 20-30%. It is nothing compared to the trial but better than nothing and enough to not risk another surgery on my back.
I’ve has too many surgeries on my entire body from my eyes, ears, and nose to almost every large joint and my GI tract. I can’t have anymore elective surgeries without risking my CRPS to spread to more areas. It’s already spread too far already.
My overall pain relief goal is 50-60% and I’m close to achieving it. I’m right at 40% on a good day with the decrease to Percocet. Even on Dilaudid I only reached maybe 60 or 65% but I slept most of the day away.
Not exactly a good existence.
But I never have and still don’t know what to expect from this disease.