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← Return to Hypercalcuria on Tymlos
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A nurse from the doctor's office finally called today regarding my extremely excessive urine calcium on Tymlos. She said to either stop the drug or take it every other day. I am planning every other day, but wondering how low I can go on the dose while remaining at least somewhat therapeutic. Anyone know? If I have to stop the Tymlos I want to ready with a relay drug to save any gains I might have. I think I read a study that said the dose needs to be at least 40 in order to be therapeutic.
The nurse is going to schedule me for a renal ultrasound to look for kidney stones and I have telehealth visit with the doctor on the 16th. Someone asked me to post my CTX score: 419. That's after three months on Tymlos. My baseline was 436, but I was nine weeks out from a moderate lumbar fracture, so I don't know if the baseline is very accurate. My P1NP has increased 100%.
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Yesterday I talked with a CVS pharmacist as my insurance company and my doctor unknown to me had issues with paper work. This means I couldn't get this month's Tymlos . So I had two questions: 1) would I experience any side effects for stopping the drug ,CVS response was No! and so far that is very true. 2) Would would happen long term to the dosages I'd already taken? The response was that Tymlos would just continue where it left off. Hope this helps you.