My first SBRT was 20 gy to the remnants of the metastasised tumour on my spine at T3. It left me with serious fatigue a couple of weeks later, and some permanent pain/nerve damage between my spine and shoulder (though much of that could be due to the earlier spinal-cord compression or the subsequent emergency debulking surgery). I was on Pregabalin for over 2 years to manage the nerve pain, and am only now just about titrated off it, after a few failed attempts earlier.

My second SBRT was 60 gy to the prostate itself. Like, you, I didn't experience any significant side effects at the time, though a year later some bladder damage surfaced, and gave me an awkward summer (peeing blood a few times, and never able to be far from a bathroom) until it magically cleared up in the fall.

After SBRT (Proton) and ADT ( One shot, 4 month dose)

My most intense symptoms were 30 to 90 days out
Gi disturbance and a bout of rectal bleeding. Frequent urination. fatigue, hot flashes . Muscle loss. Weight loss, (9 lbs.)
After 120 days strength started to return, gi back to normal and hot flashes gone.
Lost 1 inch in high.
Developed back pain related to deconditioning.
6 months of PT and now personal training.
Feel fit, sleeping well and no gi or urinary symptoms.
Some back pain yet, although I am now very active.

You are as anal as I am writing everything down in a log. I live with Excell spread sheets. I keep getting asked by the nurses and PAs were you an engineer. No, I just used a lot of statistics in my manufacturing career. Keep up the log as it is very helpful to a lot of us. How about sex drive and ejaculations?

One thing that might help: my radiation oncologist explained to me that the radiation keeps working for about six weeks after the SBRT treatments finish, which is why side-effects sometimes don't surface until then.

I completed: 2/2 SBRT, 24/25 EBRT and soon will complete 4 months of ADT. My body, UT and rectum, *urgently* need to recover after being injured by radiation and by taking those awful drugs. I have uncomfortable hourly urination and had two episodes that nearly sent me to ER (passing stone and temporarily blocked urine). I’m praying that all cancer is gone, however, should it reoccur, I won’t be concerned that I didn’t add the last 180 cGy and I’m confident that the options, in say 10 years, for diagnosis and treatment will be significantly improved. I look forward to my recovery/monitoring and to the removal of the wretched target marks that are precisely what the infamous Zodiac killer is associated with, a cross in a circle.

Praying with you. Great thought about the future. Thanks for the update.

Finished 5 day sbrt Friday 1/6/24.Taking 1 flomax and urinating 6-7 times a night.4 last night.Small bowel movements.