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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 14 hours ago | Replies (7067)Comment receiving replies
Hi Hank, I haven’t tried Kratom no. I can’t really remember what that is, sorry! I’ve tried mirror therapy, needling, etc but access to KNOWLEDGEABLE CRPS therapy is impossible. I’m the one suggesting treatment to my pain provider after checking with my neurologists to make sure I can do it—I’m epileptic with history of tonic-clinic seizures and related aura and non-aura fully engaged migraines since I was 13 years old.
My history and diagnoses make treatment very complicated. Physical therapy has proved to be a waste of time, energy, and resources (money, time, and spoons), not to mention the incredible pain I suffer in the aftermath.
I’ve had over 25 surgeries in my lifetime alone to go with my husband’s 40. The last one was supposed to make my life easier instead it marked the destruction of everything I’d built in the face of those challenges.
I may be tired but I’m not defeated. But I will say this— a little respite I’lll I’ml I’m
short-sighted, bureaucratic ridiculous battles would be nice. Lol
As for my DRG? The testing Phase went great but when they implanted it, my relief dropped from 90% to 25-30%. I discovered they had switched the leads. Doctors especially ones who have patents pending on leads- have little ethical code.
I keep the DRG SCS because relief is what it is no matter the degree pain relief matters.
Thanks for the reply.
Replies to "Hi Hank, I haven’t tried Kratom no. I can’t really remember what that is, sorry! I’ve..."
@faithwalker007
I appreciate your answer to my post. From everything I have read so far from you I would say that you are like the little engine that could, i.e. you will not be stopped no matter what. I find that very inspirational. Were your 25 surgeries related to the seizures, and have they helped you? Did the CRPS develop out of the surgeries do you think? Wishing you good luck in your fight for pain meds!
Thanks, Hank
Connect
@faithwalker @jesfactsmon Hi Hank and Renee, First, Hank, you are just simply the best. You could be the secretary of Connect, being how well you keep track of everyone here. Thanks from the heart. Renee, my heart goes out to you. Yes, I do remember writing to you in the past, and I am here to perhaps help you. Notice the perhaps, because with pain, you really just never know. First, Calmare (Scrambler) therapy must be mentioned. It is a device that brings electricity to where you hurt and there is good research about it with CRPS patients. I had it done in 10 sessions, 45 minutes per session. It alleviated pain quite a bit for about 3 weeks, and then stopped helping. I repeated these sessions, and it did not help at all. I am still telling you because I have met 2 CRPS patients that it helped very much. I also have the DRG stimulator for about 3 months now, and it barely does anything to help at all. Seemed I had about a 50% relief of pain during the trial, but it just is not working with repeated adjustments, programs, etc. Next to see if my wires have migrated. Any insights about the DRG that you have would help me much, just to know what you think may have gone wrong. Lastly, most importantly, is Kratom, because Kratom is the only good thing I know of to take for severe nerve pain. However, it is not FDA approved, and the moderators would rather I speak of it in private messages here. Please, let me tell you about it if you are interested. Message me at LoriRenee1 I am here to help, if I can. Lori