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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: Apr 26 9:22am | Replies (6794)

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@jimhd

@faithwalker007

Browsing the web this evening, I found an article, "Fighting Chronic Pain", by Peter Jaret, in the April 2013 issue of AARP magazine. It's pretty well buried, but I persisted by searching with the keyword "opioid". I arrived at the AARP website via federal seniors with disabilities searches.

Anyway, if you want to get your BP up a notch, read the silly things he reported as options for pain relief. Not all silly, but to anyone with chronic intractable pain, is massage a viable long term solution? Or acupuncture (who can afford either one, since Medicare doesn't cover them - that in itself ought to call into question the effectiveness of the many alternative therapies)?

I read the article and the comments by people who live in the real world, and have severe chronic pain. I'm going to outline a comment of my own and post it.

I haven't yet found a committee in Oregon that is addressing this issue. Unfortunately, Oregon has set the 90mg limit on opioids. Yes, marijuana is legal here, but that's meaningless to someone like me who can't afford the doctor who prescribes, the fee to the state (both around $250, annually), or the expensive product. On top of that, my doctor said that if I used any cannabis, he would stop prescribing any pain meds.

I know from experience that morphine gives me 50% pain relief, if I take my full prescribed amount, which I don't because I'm afraid of running out or being denied, and if I could get a therapeutic dose, it would be even higher. Jaret reported that opioids give only 20-30% relief. I have to wonder if he spoke with anyone who is in tears or suicidal because of the terrible pain. If he or someone he cared about were in that position, I wonder if he'd write the same (in my opinion) nonsense.

End of vent.

Jim

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Replies to "@faithwalker007 Browsing the web this evening, I found an article, "Fighting Chronic Pain", by Peter Jaret,..."

Jim, I’m not surprised you are not finding anything. We just created our Committee this year! New Hampshire passed their legislation after two years and much effort. This is not a new concept but for us it will and is a tough job due to our pain level. But the stupidity and short-sightedness of the bureaucrats running the medical system now must be stopped before anymore of us Jill themselves. Wyoming has the highest suicide rate in the nation and this craziness must stop. It can’t continue.
WE must step up to the plate and get in the fight or we will end up in the ground. (Well, not me but that’s another story for another time! Lol)
I suggest networking, Jim. Find fellow Chronic Pain patients of the same drive and thought like you and I in your state. You can search them out at these places:
1. The Independent Living Organization has services, programs, education and advocacy: http://www.ilr.org
2. RSDSA.org support groups and online resources and meetings: