Hello, Jim. I agree wholeheartedly and your story almost mirrors my own except I’m in OxyContin and my doctor will not let me take it 3 times a day. My pain is at a 8-9 level most of the time and I was on Dilaudid to deal with it. It worked but I had no life. I voluntarily took myself down to Percocet 10 qid which escalated my pain flares but I’m determined not to be a zombie.
My suggestion to you if you can do it? Join or create your own Disability Advocacy Task Force. Check Oregon Independent Living. We have Wyoming Independent Living and it’s funded through a national program for the disabled. They help find funding for electric wheelchairs, scooters, and advocate for the disabled in Wyoming.
I’m a member of WYDPAC - Wyoming Disabilities Peer Advocacy Committee - and our platform contains travel, healthcare, Opioid legislation, and many others.
We need to step up for ourselves because nobody will do it for us.