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Pancreatic Cancer Group: Introduce yourself and connect with others

Pancreatic Cancer | Last Active: 18 hours ago | Replies (1417)
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@julieacklin

Hello. I was diagnosed in September with Stage 4 Pancreatic Acinar Cell Carcinoma. I know it is not as common and I have not seen many on here with this diagnosis. I would love to hear from anyone- regarding treatment etc . I have had 4 Folfirnox treatments at Mayo/Phoenix and am doing well with little side effects. I’m scheduled for my first scan next Wednesday (stressful!) and I am so hopeful that it will show shrinkage and positive results.

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Replies to "Hello. I was diagnosed in September with Stage 4 Pancreatic Acinar Cell Carcinoma. I know it..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 5 8:53pm

Hello @julieacklin and welcome to Mayo Connect. Those of us with rare cancer diagnoses understand how important it is to connect with others who have the same diagnosis. On Connect, there is a discussion on this type of cancer. Here is the link,
--Anyone have Acinar Pancreas Cancer?
https://connect.mayoclinic.org/discussion/neuroendocrine-acinar/
I would encourage you to read the posts and ask questions. There you will meet @stageivsurvivor and others who can share with you their experiences with this type of cancer.

That is great that you have tolerated the chemo treatment with little side effects. When did you begin the Folfirinox treatments?

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Colleen Young, Connect Director | @colleenyoung | Jan 13 3:06pm

Hi Julie, I'd like to add my welcome. How did your followup appointment go last week?

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