Hi Hank, I haven’t tried Kratom no. I can’t really remember what that is, sorry! I’ve tried mirror therapy, needling, etc but access to KNOWLEDGEABLE CRPS therapy is impossible. I’m the one suggesting treatment to my pain provider after checking with my neurologists to make sure I can do it—I’m epileptic with history of tonic-clinic seizures and related aura and non-aura fully engaged migraines since I was 13 years old.
My history and diagnoses make treatment very complicated. Physical therapy has proved to be a waste of time, energy, and resources (money, time, and spoons), not to mention the incredible pain I suffer in the aftermath.
I’ve had over 25 surgeries in my lifetime alone to go with my husband’s 40. The last one was supposed to make my life easier instead it marked the destruction of everything I’d built in the face of those challenges.
I may be tired but I’m not defeated. But I will say this— a little respite I’lll I’ml I’m
short-sighted, bureaucratic ridiculous battles would be nice. Lol
As for my DRG? The testing Phase went great but when they implanted it, my relief dropped from 90% to 25-30%. I discovered they had switched the leads. Doctors especially ones who have patents pending on leads- have little ethical code.
I keep the DRG SCS because relief is what it is no matter the degree pain relief matters.
Thanks for the reply.