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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 12 hours ago | Replies (7067)
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@jesfactsmon

@faithwalker007
Hi Renee, I'm Hank and I noticed this post of yours as I was poking around Connect this morning. I also went and read some of your previous posts from 2019. I'm sorry for your painful condition of CRPS. Also sorry about the hassles you are having getting the meds you need to give you a little bit of comfort. I noticed you and Lori @lorirenee1 talked back in 2019. If you look through your old posts you'll find your conversation with her. I have some questions:

Did you ever get around to trying kratom? If so, results?
Did you ever look into the Calmere (scrambler) therapy? If so, results?
How is your DRG stimulator working for you at this point and are you happy with it?

Lori had a DRG installed about 3 months ago or so and so far it seems it has not worked as well as hoped. Maybe you guys can compare notes. I love all of your pictures. Love your great dog! It's a shame such a seemingly idyllic life that you were living had to be so badly messed up by something as seemingly innocuous as knee surgery. I'll tell you, with all the people getting things such as CRPS and neuropathy from surgery these days it is making me very reticent to have surgery ever!

Best to you, Hank

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Replies to "@Faithwalker007 Hi Renee, I'm Hank and I noticed this post of yours as I was poking..."
Faithwalker007 (Renee) | @faithwalker007 | Oct 5, 2020

Hi Hank, I haven’t tried Kratom no. I can’t really remember what that is, sorry! I’ve tried mirror therapy, needling, etc but access to KNOWLEDGEABLE CRPS therapy is impossible. I’m the one suggesting treatment to my pain provider after checking with my neurologists to make sure I can do it—I’m epileptic with history of tonic-clinic seizures and related aura and non-aura fully engaged migraines since I was 13 years old.
My history and diagnoses make treatment very complicated. Physical therapy has proved to be a waste of time, energy, and resources (money, time, and spoons), not to mention the incredible pain I suffer in the aftermath.
I’ve had over 25 surgeries in my lifetime alone to go with my husband’s 40. The last one was supposed to make my life easier instead it marked the destruction of everything I’d built in the face of those challenges.
I may be tired but I’m not defeated. But I will say this— a little respite I’lll I’ml I’m
short-sighted, bureaucratic ridiculous battles would be nice. Lol
As for my DRG? The testing Phase went great but when they implanted it, my relief dropped from 90% to 25-30%. I discovered they had switched the leads. Doctors especially ones who have patents pending on leads- have little ethical code.
I keep the DRG SCS because relief is what it is no matter the degree pain relief matters.
Thanks for the reply.

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