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@cwitton1, I'm sorry to hear that you've been shunted from specialist to specialist without solutions. I've added your discussion to the Automimmune Diseases Support Group and the Chronic Pain Support Group as well.
You certainly got a lot going on. I wonder if while at Mayo Clinic you were referred to either the:
- Fibromyalgia and Chronic Fatigue Clinic https://www.mayoclinic.org/departments-centers/fibromyalgia-and-chronic-fatigue-clinic-minnesota/overview/ovc-20485870
or the
- Pain Rehabilitation Center https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
If not, I can connect you with graduates from these programs who have found them to be very helpful, especially when dealing with multiple conditions and unresolved pain.
Replies to "@cwitton1, I'm sorry to hear that you've been shunted from specialist to specialist without solutions. I've..."
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I don’t think anyone at Mayo understands the costs of doing a week or more in a program. Travel, food, gas, lodging, missed work- not to mention the mental burden and emotional toll being at the “world renowned” Mayo Clinic desperate for answers and treatment only to walk away with nothing. I could list every modality I have tried to get this pain to release its death grip, but I don’t think there are enough characters. Believe me, I am mindful. Thanks for the reply.