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@triciaot

@shirley411 I hope someone with this type of experience responds soon. I know posting a question and not getting feedback for a while can feel like you’re in an echo chamber!
If they are saying that from now on you’ll only be seeing once a year MRI, I would think that’s not enough. Especially after grade 3 cancer.
Is this an initial 6 mos mammogram or your first annual mammogram since surgery? Did they do any type of scan immediately after surgery (so they feel it’s clear)? Right after my segmented mastectomy and mastoplexy they did a mammogram (I was appalled they were going to put my freshly sliced and diced breast into a mammogram machine - but they said they’d use light pressure. I’m guessing the scan was to confirm there wasn’t leftover cancer and that the metal tag was still in place).
Did the pathology report from the lumpectomy and lymph nodes give a clue that they might not be as worried about recurrence? No chemo or radiation, right?
They either feel confident an earlier scan is not needed, or they don’t have enough MRI machines to accommodate you sooner. I’d ask for a more clear explanation on the data they’re using to base the decision to wait. They can, and should, address your concern. It’s important to reduce your stress level, and getting clarification on their decision may help!

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Replies to "@shirley411 I hope someone with this type of experience responds soon. I know posting a question..."

Thank you so much for your response. The reason I've been extra concerned is because I did have surgery, chemotherapy (with dates missed due to unacceptable blood counts), 11 days in the hospital because blood counts were so low, a transfusion, 33 rounds of radiation (all from Oct. 2020 - June 2021), and all scans since then. I still see the oncologist every 3 months. Until this last round of blood testing my tumor markers were in the high range and kept getting higher. Now that I've stopped Verzenio (I still take Anastrozole), the tumor markers are finally in the normal range. At surgery I had 4 lymph nodes removed, one showing macro metastasis. Since the cancer had already moved out of just the breast tissue and was in the nodes, it increases the chance it will metastasize somewhere else since it already escaped into my lymph/blood systems. If I would have known they wouldn't really be able to perform a mammogram I guess I might have decided upon a full mastectomy of that breast and then I wouldn't have to worry about unscannable breast tissue. So, for the right breast, I can only get the MRI versions once per year.