My name is Renee and I have severe chronic nerve pain from Complex Regional Pain Syndrome. I was diagnosed in February of 2019 after searching for answers from over nine different specialists and providers and numerous MRIs, CT Scans, x-rays, nerve studies, and spinal injections for pain. I was informed by these providers that I had scoliosis, post-surgical inflammation, arthritis, rehab illness, sensitivity to pain and work, and “nothing at all except psychosomatic symptoms.”

I developed severe weakness and pain in my right ankle, side of lower leg, upper leg, and lower back following a right knee replacement in June of 2017 which progressively grew worse and developed into ankle and foot allodynia and foot drop.

After visiting an orthopedic hand-foot specialist nearly 600 miles from my home who immediately referred me to an orthopedic spinal and back specialist, abnormalities were detected and I was referred to a neurologist. I spent seven hours and went $7000 into debt due to insurance refusal to pay for pre-authorized testing at this doctor’s office but he determined that I had major nerve damage to my lumbar-sacral plexus from the knee surgery and most likely Complex Regional Pain Syndrome. He referred me to a chronic pain specialist for further treatment and study.
It was there that I discovered I definitely had CRPS and at the implantation my DRG Spinal Cord Stimulator, the diagnosis was refined to Type 2, progressive with nerve damage and little chance of remission.
Since that day in December 2019, I have lost a 23 year career as a pharmacist, of which I was a manager in the last 6 months, a career as a multi-published Christian author although I do try to write and blog, and an avid outdoorswoman and Hunter, but as you can see, where there is a will, there is an way!
I can’t stand, sit, or lay flat for longer than 15 minutes. I can’t walk farther than 50 yards, lift over 5 lbs, or play my guitar.

I can advocate for those in my position, suffering my pain, and have no other pain relief covers but OPIOIDS. I’m allergic or can’t take any other meds making opioids and my SCS the only relief available to me and my disabled husband (post-surgical traumatic arthritis - 39 surgeries). I also know for a FACT that the CDC Opioid Guidelines do not apply to us.
Thank you and Remember God gives us strength to face the day. Ask Him for it!

In Christ Always,
Renee