Hi everyone, I too live in pain due to my Myotonia Congenita. I can’t sleep. I am still waiting for my results on my genetic test should have them in another 2 weeks. I try to keep moving but then if I do too much it starts to hurt, if I sit too long I just don’t want to move because I know it’s gonna be hard to get my legs moving and the pain is severe. I feel everyone who is suffering and I just want to take everyone’s pain away. It’s horrible to live like that. I just want to say be very proactive in your health and don’t give up. It took me a year to have another test done. I explain in details to my doctor the pain I have. I am very up front with him. I told him on the first day I met him that I don’t beat around the bush and I want him to listen to me. I also wrote down everything that makes my pain worse and my legs not to work along with my hands. So Please anyone who is in pain write it all down, especially on your bad days and when you see or talk to your doctor give them or read your list, this list will really help them if they are Good doctors. Hang in there there will be better days ahead💕

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