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Metastatic renal cell cancer: Cyst in maxilla bone area

Kidney Cancer | Last Active: Jan 16 8:07pm | Replies (15)

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@hrhwilliam

Yes, I agree with Tom. You now should ask your physicians about their familiarity with Ameloblastoma. Further, are they pushing the free flap surgery because they want this on their resume' or because this is best for you? That sounds harsh but something here doesn't sound quite right. If it's free flap surgery, then my advice would be to go somewhere where they have had a lot of experience in this area such as Mayo Rochester, or MD Anderson. Do not hesitate to ask about the surgical team's experience in this. Free flap is a really big deal requiring considerable pre-surgery model work-up and prep.

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Replies to "Yes, I agree with Tom. You now should ask your physicians about their familiarity with Ameloblastoma...."

You and @tomschwerdt were right on target so far!! Sloane finally got in touch with me last evening. The clinical person/scheduler who my file was given to said she looked at it and was skeptical. It was a referral for the surgery from my doctor and she said "Something doesn't look right" and sent it off to be reviewed by the clinicians to decide whether it should go to an oncologist, a radiation doctor or a surgeon!!! Hopefully, the right decision is made!!