I think we’re all suffering from being prescribed conventional solutions to a new and unconventional disease. My eyes do not jerk. They feel tight in the socket, and I have lights orbiting my peripheral vision. This is almost constant. I’ve sort of learned to ignore it.
Because I had mild cataracts, the treatment was cataract surgery, which of course did not solve the problem. My eyes have been extensively examined for surgery, and according to doctors are fine.
Lacking any other choice, I see a retinologist soon. I’m looking for assurance I am not going blind, but doubt this new doctor will get to the bottom of my issues.
This is just one aspect of my symptoms. For each symptom, I’m offered nothing, or a conventional treatment that doesn’t address what I’m going through.
I think that is the case for most of us. Someday there may be a treatment, but when?
Maybe not soon enough for any of us. Or maybe when we are all gone, this malady will be forgotten?
Integrative Medicine is more creative, but after two months in treatment I have seen no improvement in my symptoms.