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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 26 minutes ago | Replies (7050)

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@aggie98

Hi, I’m Aggie 98 but my name is Karen. I’ve just started with Connect. I have severe peripheral neuropathy from my toes to the top of my knees. This popped up over 4 years ago from nowhere, such as I am not diabetic. Actually many specialistS in my part of Texas called it “idiopathic” but I self-referred to the Mayo Clinic in Rochester, MN, because I believe everything has to come from somewhere. They had lots of answers for me but unfortunately no cure and not much help for the pain. I’m so glad I found this group. I am not a whiner, but no one understands chronic pain unless he/she has it. Any advice would be great.
Marijuana is illegal in Texas and I don’t think it will ever change here. I just mention this because some other members have suggested it. Thanks for all of your help.

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Replies to "Hi, I’m Aggie 98 but my name is Karen. I’ve just started with Connect. I have..."

Good morning @aggie98, Just started with Connect and look how much you have done. Knowledge is power and you are a knowledge seeker. Would you like to share some of the recommendations from your clinicians at Mayo Rochester. I think @johnbishop also sought a diagnosis from Mayo and it was similar to yours.

Before I forget.....Doterra’s “Adaptive” has been helpful for the tingles and itches.

The most difficult thing to achieve is acceptance. Acceptance of the fact that at this time there is no cure for neuropathy in all of its formats is so difficult. The search for relief leads folks to spend time and money chasing a vision of cure that doesn’t exist, at least not yet. We need more funding for research and yet there is a pretty long line in front of us.

Here’s my best for right now.....learn mindfulness so that you can redirect the sensations in your body or even mask them. Meditation gives your brain a rest from coping with discomfort. And my third relief strategy is restorative yoga.

Another knowledge seeker is @rwinney. She relentlessly travels down any path that might lead to a more productive and rewarding life. When she hits a brick wall, she has only to let us know and we help her pick herself up and find another option to explore and share with all of us.

Let me know what is showing signs of calming your body and relaxing your mind. They are connected....mind, body, and spirit. We just need to get them marching to the same drummer.

May you have happiness and the causes of happiness Karen.
Chris

Hi aggie98, and everyone, I also am new member of connect. I started having similar pain in my right leg three years ago then pain in my groin area in my left leg. Three things have helped and I am considering a forth.
1. The discomfort in my toes turn out not to be due to diabetes but a pinched nerve. Physical therapy and B12 were prescription by my neurologist.
2. The physical therapy additionally included adjusting my discs. My low back S1 and L1 were out of line. A special machine was used to gently move the discs back in place after several sessions.
3. The physical therapy and massage therapy and chiropractor helped the pain in my groin some. The real pain reduction in pain was from exercise I started following. I purchased a book titled Forever Painless by Miranda Edmonde-White. I did the warm up exercise only, because at first I had pain. After about three weeks my movement were smoother, although it took about 45 minutes to do what was supposed to be 15. However after 6 months of doing the exercise twice a day I was completing with in 15 to 20 minutes with no pain. As long as I do the exercise daily I have no pain attacks.
4. Turns out the hip or groin pain was caused by my hip being worn out. There is bone on bone contact in my leg to hip joint, going to have surgery some time this year. However the exercise warm up in Forever Painless are keeping my pain under control. I highly recommend the book Forever Painless by Miranda Esmonde-White.