← Return to Anyone think that it’s no longer long Covid? just permanent damage?

Discussion
Comment receiving replies
@smdawson540

I don't think there is a cure for long COVID. My LC clinic told me that COVID went through and turned on my "bad genes". I have non-curable issues - POTS, Neuropathy, CRPS, gastroparesis, etc. I am at my best acceptance point of my new normal after over 3 years of hell. There is no going back and being who I was before. I am working on the best case scenario for the messed up new me. Low energy hobbies. Low bar happiness - example being I woke up today. I made coffee and could drink it. If I have a day and crave a food that in turn smells good and I can eat is really exciting. Even as we navigate our new normal, remember we all still have value. It can always be worse. I would rather wake up and feel bad vs not waking up. Happy New Year. I wish us all good luck and the base case living with our new normals.

Jump to this post


Replies to "I don't think there is a cure for long COVID. My LC clinic told me that..."

Trying not to hate the “new me”. I cannot hear, or see well. I’m dizzy, constipated, have tinnitus and hyperacusis. Since I cannot hear or see well I can’t drive....and where would I go? Stores and crowds overwhelm me.
Like you, I try to enjoy a pretty day. I go outside and walk a little. While food isn’t what it used to be (I’ve lost thirty pounds) sometimes I can eat. I know others are suffering too, perhaps more than me.
I go to my various health therapies with little to no improvement. The tools are not right, but people want to help.
Happy New Year, and God help us all.

My long Covid speech/cognitive therapist told me I can’t try to rewind and be the old me. I can create new abilities and ways to get back to where I was, perhaps even better, like people who lose a limb then become great athletes.
My daughter has pots and is in a clinical program. Her stomach issues are terrible but meds, diet, and exercise provide some relief. For my long Covid, pacing is really important- how I manage my energy levels, sleep times, activities. I know not to schedule important business meetings at the day because I’m sometimes too exhausted to remember how to use my computer or speak without slurring. Yes, we all have value. If we keep our eyes and hearts open, there’s endless parts of the day to enjoy, like a squirrel running in the snow and leaving cool footprints, then my dog sniffing the prints.