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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Aggie98 | @aggie98 | Jul 16, 2020
In reply to @donfeld "You to Rachel and be safe" + (show)
@donfeld

You to Rachel and be safe

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Thank you.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 16, 2020
In reply to @aggie98 "Hi Rachel, My name is Karen and I hate to admit that my chronological age is..." + (show)
@aggie98

Hi Rachel, My name is Karen and I hate to admit that my chronological age is 70 but my brain thinks I’m 45 which is good. That means no dementia. I live in conservative Texas where we will never have marijuana, although I’d use it in a second. I’ve been to tons of Physical Therapy over the last 4 years. I was going when this Coronavirus hit so I had to quit going.
I have no core center of balance so I must use a walker or wheelchair—both of which I hate.
My legs are totally numb on the outside but i have horrible neuropathy pain on the inside. I know that sounds weird. I took handIcapped driving lessons and had my car converted so I can drive by hand. I have helped the pain at night by using a good grade essential oil like DouTerra or Young Living and mixing several drops of Francinsence or Copaiba with lotion and spreading it over my legs. In about 10 minutes the pain is gone for the night and I can sleep. I hope this part can help someone.

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Hi Karen @aggie98, It's nice to meet you. Dont hate to admit your age...you have earned that badge of honor you call 70. That's how I feel about my 50, that I recently turned. I still feel 30! My mom just turned 70 and she, like you, does not feel her age despite her disabilities (which she's had since age 28). So much of this life evolves from our spirit, soul, and desire.

It sounds like you've got a good handle on your evening regimen. I'm impressed you've found this concoction that works and no doubt others are listening to your tips. We are all here to help each other so thank you for your positive contribution already.

It's unfortunate Texas is not yet on board with Medical Marijuana. How about myofacial release therapy? Have you ever received it? It's a wonderful treatment for neuropathy to keep the fascia loose and help work muscles. @artscaping swears by it to keep her feet moving and able to drive (and she is a bit more mature than you, age wise 😊).

You mentioned 4 years of PT and Covid stopping it. Any chance your area is open yet for PT? I know Texas is struggling so it might be tough. I'm sorry.

Your description of painful legs sounds awful but, not weird. I experience the same in my arms and have in my legs as well, I understand. The crap of PN is that it hurts to use our body and our limbs but, if we don't...It will hurt worse and set us back further. Might you be able to have a therapist come to your house? Are you able to mildly stretch daily? Perhaps implement some of what you've learned in PT over the years?

I'm sorry for your struggles but, very impressed by your tenacity to learn to drive hands only. Wow, that tells me alot about your will to not give up or give in. You'll fit in quite well here on Connect! 👍🏼

Best wishes,
Rachel

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Mentor
Jim, Volunteer Mentor | @jimhd | Jul 17, 2020
In reply to @aggie98 "Hi Rachel, My name is Karen and I hate to admit that my chronological age is..." + (show)
@aggie98

Hi Rachel, My name is Karen and I hate to admit that my chronological age is 70 but my brain thinks I’m 45 which is good. That means no dementia. I live in conservative Texas where we will never have marijuana, although I’d use it in a second. I’ve been to tons of Physical Therapy over the last 4 years. I was going when this Coronavirus hit so I had to quit going.
I have no core center of balance so I must use a walker or wheelchair—both of which I hate.
My legs are totally numb on the outside but i have horrible neuropathy pain on the inside. I know that sounds weird. I took handIcapped driving lessons and had my car converted so I can drive by hand. I have helped the pain at night by using a good grade essential oil like DouTerra or Young Living and mixing several drops of Francinsence or Copaiba with lotion and spreading it over my legs. In about 10 minutes the pain is gone for the night and I can sleep. I hope this part can help someone.

Jump to this post

@aggie98

Welcome to Connect, Karen. I'm turning 70 in August, but I don't (usually) feel as ancient as that sounds.

Oregon, where I live, legalized marijuana a while ago, both medical and recreational. Trouble is, no doctor in central Oregon will prescribe it, so you have to meet with a doctor who makes the rounds of a bunch of weed stores. She's in my town one day a month, and the last I heard was that the annual visit is around $250.00. Then there's another $250.00 to the state for a permit - also an annual fee. If you can afford that, you still have to buy it, and medical marijuana is very expensive. I suppose that some day insurance will cover it, but at this point it's all on you.

There are products available online that are derived from marijuana. Three of my siblings use CBD oil and swear by it. Rachel, I think, mentioned Chris @artscaping as a helpful resource.

Do you purchase the ingredients for your potion at a store or online? It's great that you have found something that lets you sleep without pain.

Jim

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2 replies
Donald | @donfeld | Jul 17, 2020
In reply to @jimhd "@aggie98 Welcome to Connect, Karen. I'm turning 70 in August, but I don't (usually) feel as..." + (show)
@jimhd

@aggie98

Welcome to Connect, Karen. I'm turning 70 in August, but I don't (usually) feel as ancient as that sounds.

Oregon, where I live, legalized marijuana a while ago, both medical and recreational. Trouble is, no doctor in central Oregon will prescribe it, so you have to meet with a doctor who makes the rounds of a bunch of weed stores. She's in my town one day a month, and the last I heard was that the annual visit is around $250.00. Then there's another $250.00 to the state for a permit - also an annual fee. If you can afford that, you still have to buy it, and medical marijuana is very expensive. I suppose that some day insurance will cover it, but at this point it's all on you.

There are products available online that are derived from marijuana. Three of my siblings use CBD oil and swear by it. Rachel, I think, mentioned Chris @artscaping as a helpful resource.

Do you purchase the ingredients for your potion at a store or online? It's great that you have found something that lets you sleep without pain.

Jim

Jump to this post

If you live in a state where it's legalized for recreational use that's where you buy it. You don't have to buy a lot as you get a very tiny little pipe and just a splash of of weed take to pokes and that's all you're going to need. It's the THC that will just slowly calm you down in a few minutes and the best part about marijuana there is no side effects. In fact all the side effects are good you feel good you're hungry, you eat well and you laugh. They're using marijuana and Israel to nursing homes and they are getting such great results as well as dealing with the comfort of their patients along with helping with dementia. It's been around for thousands of years and it will be another thousand years that millions of people use it. Again, it's not the creases the pain it makes it more comfortable to deal with it.

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1 reply
opi | @opi | Jul 17, 2020

From experience the best way to take THC is in a oil mixture - a few drops under your tongue- start with 1 drop in the morning and 1 before sleeping. Increase as required and add a third intake if required at noon. To be taken only after eating .

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 17, 2020
In reply to @donfeld "If you live in a state where it's legalized for recreational use that's where you buy..." + (show)
@donfeld

If you live in a state where it's legalized for recreational use that's where you buy it. You don't have to buy a lot as you get a very tiny little pipe and just a splash of of weed take to pokes and that's all you're going to need. It's the THC that will just slowly calm you down in a few minutes and the best part about marijuana there is no side effects. In fact all the side effects are good you feel good you're hungry, you eat well and you laugh. They're using marijuana and Israel to nursing homes and they are getting such great results as well as dealing with the comfort of their patients along with helping with dementia. It's been around for thousands of years and it will be another thousand years that millions of people use it. Again, it's not the creases the pain it makes it more comfortable to deal with it.

Jump to this post

I have to say, I do have have side effects from my medical marijuana oil, that make me not like it at times. Depending on my pain levels and types of pain, I may accept the sleepiness, brain slightly altered side effects . I can adjust the dose of course to control however, lower dose does not provide acceptable relief. But, that's just me.

REPLY
3 replies
Donald | @donfeld | Jul 17, 2020
In reply to @opi "From experience the best way to take THC is in a oil mixture - a few..." + (show)
@opi

From experience the best way to take THC is in a oil mixture - a few drops under your tongue- start with 1 drop in the morning and 1 before sleeping. Increase as required and add a third intake if required at noon. To be taken only after eating .

Jump to this post

I'm not talkin about CBD with drops.

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Donald | @donfeld | Jul 17, 2020
In reply to @rwinney "I have to say, I do have have side effects from my medical marijuana oil, that..." + (show)
@rwinney

I have to say, I do have have side effects from my medical marijuana oil, that make me not like it at times. Depending on my pain levels and types of pain, I may accept the sleepiness, brain slightly altered side effects . I can adjust the dose of course to control however, lower dose does not provide acceptable relief. But, that's just me.

Jump to this post

We all doesn't work for me.

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Donald | @donfeld | Jul 17, 2020
In reply to @rwinney "I have to say, I do have have side effects from my medical marijuana oil, that..." + (show)
@rwinney

I have to say, I do have have side effects from my medical marijuana oil, that make me not like it at times. Depending on my pain levels and types of pain, I may accept the sleepiness, brain slightly altered side effects . I can adjust the dose of course to control however, lower dose does not provide acceptable relief. But, that's just me.

Jump to this post

Oil does not work for me either. I've been smoking marijuana since the 60s and it works. But I smoked it only for medicinal purpose and I do very little at each time. One tiny little bow just two Puffs. That's all you need if it's good quality. No side effects!

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opi | @opi | Jul 17, 2020

Our experience is with a mixure of 10%TCH + 10% CBD diluted in olive oil.

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