Spinal Stimulator removal after nine years concerned about potential p

My Doctor didn't say there could be pain after the trial leads were removed. Glad I am finding this out from you! I am in worse pain since the trial leads were removed for a Nevro tial. Who is your doctor and where if you don't mind me asking. I will travel to talk to a Dr that will give me needed information. Thanks

So true.

I have had 2 previous units. One St. Jude (now Abbot) for 4 years with paddle lead for the last 2 1/2 years. Also a DRG stimulator (Abbot) for 2 years. I had them both removed at the same time and had no related problems. My last revision (of 6!) for the original SCS involved a lamanectomy to move the paddle farther up in my spine past some scar tissue from previous installs. But upon removal my surgeon did not have any issues getting the paddle back down and out.
The key is getting a surgeon who is willing to schedule enough operating time to do the job right, not to fit his busy schedule.

Did your SCS help with your peripheral neuropathy pain, as well as back pain?

It was one of the few things that actually helped with my lower back pain. That, along with the meds that my neurologist prescribed. I had a near normal life for about 3.6 years until everything just stopped working. No one knows exactly why.

annie1 I’m in the process of getting a SCS for my neck pain from my new pain management team. We tried an ablation on my cervical spine and that didn’t work. I’ve learned to trust my intuition and I’m just not sure about this procedure. It’s been a year since your post so you might not even see this but if you do please tell me what you decided to do for the pain. SCS?
Thanks

I did the trial like I said for the narrow for my lumbar stenosis. It didn't really work much I mean maybe 5%, so I decided it wasn't worth it. I eventually had a minimally invasive surgery which is somewhat successful but now I'm having other nerve pain and have to decide what to do again. Apparently the SCS works for some people. You can always try the trial I mean you have to so then you'll see if it'll really do anything for you. I'm looking into a procedure they do in other countries but not here that is not invasive but you have to pay out of pocket it's called disco gel. Mostly for herniated discs.

Never experienced any positive therapeutic results for the SCS stimulator, which is now more of a burden when receiving MRI's

Thank you. It helps to hear first hand experience and to hear about new ideas. I’m in body wide severe pain and my rheumatologist recently said that he’s going to wean me off all pain medication. He’s retiring and my theory is that he doesn’t want to look like a narcotic prescriber when he leaves. I can’t imagine life without the help of pain meds. I already spend much of my time at home, depend on my husband so much and don’t take day trips with the family. I was offered to have a pain pump inserted by a renowned neurosurgeon at Oregons leading teaching hospital, OHSU, in Portland but he wants a physician closer to me to monitor and refill it. I can’t find anyone.
I’ve gone on long enough.
Thanks for getting back to me.
Barbara

Did not help me at all.