Connect
← Return to Chronic Pain members - Welcome, please introduce yourself
Discussion
Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 13 hours ago | Replies (7049)Comment receiving replies
I have horrible peripheral neuropathy pain from my toes to my knees. I can no longer walk. A couple years ago my so-called pain doctor took all pain meds away from me and all his patients due to the “Opium Crisis.” Now what? All of us are being punished because of a few druggies who want to kill themselves. Many chronic pain sufferers have killed themselves due to the pain. Any suggestions for pain relief?
Replies to "I have horrible peripheral neuropathy pain from my toes to my knees. I can no longer..."
@aggie98 Welcome to our caring group I just recently started with pain in my feet ,ball of foot. I found just stretching my toes help I also have O.A.in my feet and am a big proponent of exercise light ,not heavy at our age
Hello @aggie98, I would like to add my welcome to Connect along with @rwinney and other members. I'm glad you found this discussion. There are a few more discussion in the Neuropathy group that you may be interested in following.
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
Ideas for pain relief from Small Fiber Neuropathy (SFN): https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/
@aggie98 are you on any medication now for your peripheral neuropathy?
That has been my argument. You cannot turn a patient who is in severe pain away from the E.R. and tell them there is nothing you can do for them. That is a sure-fire recipe for someone to harm or kill themselves. They feel hopeless, to begin with, and also frightened that they will be in pain for the rest of their lives. They wonder what is the point. I wonder how many lives could have been saved if they were given the medication they needed to help alleviate at (at least), some of their pain.
Gabapentin helps me so much more than any opiates for pain control of my pancreatic nerves, abdominal adhesions and the neuropathy in my feet. I do have short term memory loss while on it but I would rather be forgetful than in excruciating pain.
Connect
Hello @aggie98. Welcome to Connect. I think you will find support here that will be helpful to you. I have Peripheral Neuropathy too (Small Fiber Polyneuropathy) and am sorry that your pain is severe with no help. I agree with @donfeld and also use medical marijuana for comfort and sleeping. Is it legal in your state? May I ask you your age and if you are able to get to physical therapy? Have you ever tried myofascial release?
Wishing you well,
Rachel