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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@gadawg23

I hope you have better luck than I had. I was turned down and have to wait a year to reapply.

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Replies to "I hope you have better luck than I had. I was turned down and have to..."

Oh wow, I didn't realize that there was an application process. Did they say why you were not accepted, as in, your symptoms were not what they were looking for in their study, or they already had too many people? I was thinking I could just contact them and see if I could get an appointment this summer, when I could come out to MN. I guess I will just give them a call and find out what the process is. Assuming my EM is secondary to something, I am most interested in the additional diagnostic tests to determine what that "something" is. My doctor had me try 2 weeks of high dose aspirin, which had no effect, leading her to rule out primary EM.