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Myasthenia Gravis: A debilitating MONSTER

Autoimmune Diseases | Last Active: Feb 25 1:37pm | Replies (7)
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@JustinMcClanahan

Hi @ladysullivan22 , you might be interested in joining these related discussions that were started years ago and remain active as well:

– Myasthenia gravis; Making an informed decision for my Treatment Path: https://connect.mayoclinic.org/discussion/mg-trestment-path/ –
– Myasthenia Gravis: Share your treatment journey: https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/

In those discussions, members like @diane50 and @lucylulu5280 recently shared their MG experiences with some management tips. Other than the IVIG, what other treatment options have you tried in your time with MG @ladysullivan22?

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Replies to "Hi @ladysullivan22 , you might be interested in joining these related discussions that were started years..."
ladysullivan22 | @ladysullivan22 | Feb 10 9:00pm

Thank you for your reply. I do respond to the IVIG and my symptoms lessen but don't leave. Also on CellCept at the maximum dosage per day. At 80, I don't think I'll ever be symptomless again. I also have Sjögren's Syndrome which contributes to chronic dryness everywhere! Eyes, skin, Vaginal... Wish I could be more helpful. I've had MG for 47 yrs. First episode at 33 yrs of age. Progressively downward for 47 yrs w/short periods of stability. I would recommend a GOOD Neurologist who might have a sub-specialty in chronic Autoimmune Diseases. Your Rheumatologist can work along on your team.

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