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DiscussionAnyone had experience with alternatives to Big 3 drugs for MAC?
MAC & Bronchiectasis | Last Active: Jan 12 9:26am | Replies (19)Comment receiving replies
Replies to "Sue, thank you so much for getting back!! I am just starting out. I do not..."
This link will list all the Drs in your area that have experience with MAC and will also rate them. I see top of your list is Dr Whitehouse an infectious disease Dr. and he is taking new patients https://www.medifind.com/conditions/nontuberculous-mycobacterial-lung-disease/6433/doctors
The saline nebulizing is important. Drs often prescribe 3 or 7% hypertonic saline that comes in little plastic tubes. Then you have to buy a nebulizing system to inhale the saline. Hopefully once you see a good Dr they will recommend it. Some people do not wait for that and just start the saline nebulizing by getting the hypertonic saline on Amazon.
NAC is a capsule, not a saline spray - please see my reply above. The saline solution is inhaled through a nebulizer so it penetrates deep into the lungs where the infection hides.
I'm not familiar with pulmonologists near you, the best way I know to find one is to start calling pulmonology practices and asking if they routinely treat MAC patients. If you have a hospital that specializes in respiratory care, they might have suggestions for you, too
Can you tell us a little about when and how you were diagnosed? Has anyone suggested you begin airway clearance, one of the pillars of MAC management?
Sue