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Stopping Evenity Early

Osteoporosis & Bone Health | Last Active: Jul 2 11:27am | Replies (115)

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@bebea5

Might have Growing Pains?? What does that mean?? Is Kevin McCormick your endocrinologist? Did he tell you that about growing pains??
After one injection you will not begin to feel this side effect. You have 11 more to go.
Wishing you all the best.
beb

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Replies to "Might have Growing Pains?? What does that mean?? Is Kevin McCormick your endocrinologist? Did he tell..."

@bebea5 I don't really intend to do 12 Evenity injections. I was going to do 3-4, as a follow up to Tymlos.

Keith McCormick is the chiropractor/osteoporosis guru often mentioned in this forum. He wrote "The Whole Body Approach to Osteoporosis" and the more recent "Great Bones" (700 pages). He does consults in person and by phone and I use him in addition to endocrinology.

I have done cancer meds and 2 years of Tymlos that both caused joint pains (in addition to lupus and fractures' pain). I have been told and read by several sources that growing bone may cause the kind of growth pains we had in childhood or adolescence. Again, McCormick says that 40% of his patients have that side effect. I am calling Amgen today and will tell them that, along with my own story. Of course it is up to us to decide what to tolerate but it may be a case, for some of us, that "no pain no gain."

My side effects with Evenity's first injections were bad enough (intense chest tightness along bottom of diaphragm, making it harder to breathe, pins and needles all over, anxiety and insomnia) that I am considering not doing more. I am sensitive to an ingredient, polysorbate 20. But only because I already did 2 years of Tymlos with excellent gains.