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Shingrix and peripheral neuropathy

Neuropathy | Last Active: Mar 12 1:36pm | Replies (530)

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@vici

Signed up on here for help and information. I have been doing a lot of research since diagnosis. I am a 76 year old woman, who had been very active till this hit me. Have had Idiopathic neuropathy since 1991, dr believes caused from epilepsy medication called Dilantin. It has been mild compared to many of you. Have taken B12 only. And done acupuncture. Now use a walking stick so I stand straighter as I walk, at times on uneven ground will use walker. I try to get in 3-5,000 steps a day and do mild exercise, and when weather is good work in yard. Have fallen over the years, fractured nose 4 years ago. Luckily been 7 months since I have taken a spill. Balance is concerning, when I used to walk down the street I looked like a "drunk person". Even with stick I walk a bit off side. I know a walker may be full time but fighting it!
Now diagnosed with cancer, concerned for chemo and radiation treatment how they will affect me, and will it be long term, will I lose my freedom, have to have a caretaker, go into facility. Been researching here in the PNW but not found any response yet.
Maybe someone here is going thru it. Thank you

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Replies to "Signed up on here for help and information. I have been doing a lot of research..."

Hello @vici, Welcome to Connect. I know it must be difficult for you in having neuropathy and now have to undergo cancer treatments that might add to your neuropathy symptoms. You are not alone. I'm hoping you might find the following discussions helpful to learn what others have shared:

--- What are some ways to try to minimize neuropathy during chemo?: https://connect.mayoclinic.org/discussion/what-are-some-ways-to-try-to-minimize-neuropathy-during-chemo/
--- Need hope: Neuropathy from chemo: https://connect.mayoclinic.org/discussion/needshope/
--- Chemotherapy-induced neuropathy: What helps get rid of it?:
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/.

You might also find this webinar from the Foundation for Peripheral Neuropathy helpful - Chemo-Induced Peripheral Neuropathy - https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/.

Here is a suggestion. When walking on uneven ground, instead of a clunky walker, just use 2 hiking sticks. This is sometimes called Nordic Walking. I find I can hike almost anywhere by doing this. (I'm 74.)