← Return to Lichen Sclerosus: Any other women dealing with this disease?

Discussion
Comment receiving replies
@mary47

I have been struggling with LS for two years. My OBGN prescribed clobetesol but it hasn't helped that much. When I saw my demalogist she tried clobetsol for one week and the next week Tacrolimus ointment but Tacrolimus stung. So now I am doing one week of clobetesol and the next week with Pimecrolimus cream. I'm hoping this will work (fingers crossed).
My understanding is that this will never go away. Is that correct? Can it go into remission?

Jump to this post


Replies to "I have been struggling with LS for two years. My OBGN prescribed clobetesol but it hasn't..."

My Dermatologist verified what I thought was LS and I was correct. I have had it for quite a number of years and complained to my ARPN that I had issues and she gave me things for yeast infections but nothing really helped. So I self diagnosed after reading up on what my symptoms were. I felt good to have my Dermatologist say , yes that's what you have and it had destroyed the area pretty bad, I won't go into detail. I use Clobetasol and have for quite a while. Nothing else seems to help . I have used Bag Balm which my Doctor said to try off and on as well. I wish I could say this was not life long but I do not believe there is a cure and managing it early may stop it from progressing as mine has. I read up on Pimecrolimus cream and it is used for people with Eczema so that is interesting. I will check my my Dermatologist in a few months when I have my next appt. and see if there is anything new. Take care, thanks for your post

It definitely goes into remission at times, but unfortunately it comes back too often with me. Mine even went away for a year one time. I’m under a lot of stress right now, which makes it hard to go into remission. Good luck with yours. Also, tacrolimus stinging got to where it doesn’t even bother me.

@mary47 Yes, you can keep it under control with medication that works for you (every body responds different to medications) but being an autoimmune condition there is no permanent cure for it.