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Polymyalgia Rheumatica (PMR) | Last Active: Jan 7 7:07pm | Replies (34)
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It would be helpful if you knew your test numbers. If your history
was a very sudden onset after a possible trigger like extreme exertion or an infection that might cause an acute inflammatory “storm”.
Are you responding to prednisone?
Results on prednisone, dosage needed and how it started may help your doctors speak about your progress going forward.
Rest, watch your diet and keep asking questions. I was a healthy
71 when I got off a flight from Europe with sudden onset and couldn’t lift my arms. Did well off
prednisone tapered for 13 months.
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Are you referring to a cytokine storm? Anything is possible which is why a complete health history is needed.
You are right ... @whyohwhy doesn't say he was diagnosed with PMR. I must admit that I was skeptical of my diagnosis too. My rheumatologist never said it was PMR only. She actually thought it was unfortunate that PMR was added to the mix of other things.
At the time, I didn't even know what PMR was. I was just happy to get the prednisone I needed. When I couldn't taper off prednisone for more than 12 years I wasn't too happy. Starting out with 40 mg of prednisone was a bit much for PMR and still needing 20 mg after 10 years wasn't good.
Now I'm curious about how you were diagnosed with PMR. My first symptom was not being able to lift my arms without severe pain. To a certain extent someone could move my arms for me without as much pain. My shoulders hurt the most at first until the pain started to spread everywhere. Shoulder pain wasn't what I had ever experienced before this.