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@lindakbe

Thank you, Sue, for your helpful compassion. Her son is going to be in charge of all her financial and legal issues.... I am going to be in charge of her day to day care and getting her to all her appointments (with the help of my sons, daughters, and husband). My nephew is very interested in conferencing in on all her appointments that are consultations, and has been doing so since his mom got sick. He calls her and comforts her in so many ways. He saw her at Thanksgiving, and even though I kept him up to date with her health issues with daily, detailed text messages, he was shocked to see her weakness and decline at Christmas.
He will have legal power of attorney, and medical power of attorney. I hope he will let me be joint on the medical POA because I may have to make decisions quickly ... do you agree?
She has stopped the medicine that was ?causing side effects of extreme weakness and confusion. She has improved a lot in that way, almost pre-medicine in most areas. But she is having hallucinations ... for example, she said she was scared of how my legs look.... she saw legs that had no skin and could see all my bones and muscles. It is so very hard to see her fall apart like this. But she retains her sense of humor.... she is truly a delightful woman in so many ways.
Tomorrow we start physical therapy twice a week. I hope that goes well.
Thank you again for being here. My whole family is super worried about me and really encourage me to have your support through this. (I had cancer a decade ago, and they are quite protective over me.)

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Replies to "Thank you, Sue, for your helpful compassion. Her son is going to be in charge of..."

Linda - It is a rare family that makes such a comprehensive plan. Kudos to you, your nephew, husband and kids!
I personally like the idea of aa joint medical POA because decisions often need to be made on the fly. I remember making decisions about my Grandma when my parents were away and left my sister and me - ages 25 & 30 - in charge. Neither of us would have wanted to do it alone!

Funny somehow, but even though I spent my career in technology. I was thinking last week how long I have been involved in care-giving - I remember helping my Dad with my Great-Uncles and Aunts as early as the age of 9, continued with grandparents, neighbors, parents, in-laws, and now at 72 I still talk to people about it...I know my kids will be there for us - they are already involved with their own friends and neighbors.

Tell your family, over and over, how much you appreciate their help and support - it is a rare quality.
And yes, we will always try to be there for you - as their backup.
Sue