← Return to Lichen Sclerosus: Any other women dealing with this disease?

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@kimroepke

I walk 3-6 miles daily outside. In all seasons I have trouble wearing anything that fits close to my skin or of wool. When working out in winter I was wearing lululemon leggings layer 1, heat holder leggings layer 2 and Nike leggings layer 3 during freezing temperatures and my lichen sclerosis flared up big time. Then I started wearing loose leggings without any wool fibers and it didn’t flare up as intensely, unless I sweat. I then started wearing cotton loose panties under my leggings and it also helped some. Triggers are definitely tight clothing, sweating and fibers of pants. They always cause major lichen sclerosis flares.

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Replies to "I walk 3-6 miles daily outside. In all seasons I have trouble wearing anything that fits..."

@kimroepke, I agree about certain fibers in clothing causing flares. I never could wear wool next to my body and would like to know where you found loose leggings without wool. When I am at home I wear men's boxer shorts, size medium (way too big for me), but it helps not to have anything tight in that area and a skirt; however during cold weather when I go somewhere, I have to wear pants and usually wear silk long underwear as well as cotton panties. As soon as I return home, I get back into a skirt with my men's underwear. Hooray for you walking daily! I do my video exercises from the Y. I also have a compounded cream (Lidocaine 8% in Aquaphor) that I use to numb the area. LS is just so miserable. I was told many years ago that LS is one of those "no cause, no cure" diseases. I was told the same with PMR. It would be wonderful if someone did research on LS and could come up with a cure. I think if more men had it, there would be research. But, by now there should be a cure for cancer and that isn't happening. I guess we just have to be grateful for each day we have no matter how we feel. With all good wishes, @joybringer1