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← Return to Vulvar Cancer: Anyone else?
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Gynecologic Cancers | Last Active: Jan 9 4:22pm | Replies (88)
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Juju67
I am so thankful for you. Thank you for responding
May I ask how long you have had Pagets and your age? It is so helpful to find someone else and have some support.
How long have you been free from the pagets or do you think it will come back?
Do you do any dietary measures or naturopathic medicine?
Replies to "Juju67 I am so thankful for you. Thank you for responding May I ask how long..."
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I am 67. I first noticed a growth/lesion in April 2023. I was seeing my primary care doc at that time. It took until August to get an appointment with a gynecologist. A biopsy was done and I saw a gynecologic oncologist.
I’m not sure I will ever be “free” of Paget’s as mine is invasive. As of today, it isn’t detectable anywhere else. My understanding is it could show up in other organs because it is invasive. I also am not sure if all Paget’s are invasive or not.
I haven’t sought out any dietary or naturopathic medicine yet. I am dealing with lymphedema due to sentinel lymph nodes being removed during surgery.
One step at a time. I am open to suggestions, though.
I was told the same as you as far as follow up. No scans, just a visual check.