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DiscussionChronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 21 hours ago | Replies (7049)Comment receiving replies
Replies to "Hi. I too have been on a long journey of finding pain relief after several failed..."
Hi, my name is Ute. This is my first time on this blog, and I found your reply to Jennifer helpful. As you, I have been dealing with chronic pain now for eight years. I suffer from brachial Plexopathy, a peripheral nerve condition, following a fall that displaced my clavicle. Damage to my brachial plexus only manifested itself nearly a couple of years post 2009 injury. I lost function in my arm and hand on a week-by-week basis. Then the excruciating pain in my shoulder and upper arm began and has not subsided since. I was an enthusiastic hiker and climber here in the beautiful PNW where I had moved to from a Miami, Florida, to pursue my great passion as frequently as desired. My condition has ruined that. I can no longer wear a pack, and hiking/climbing mounts trails is too painful for my left extremity. Starting in 2016, I travelled out-of-state to USC, Mayo Clinic, and Washington University. All in all, I ended up with a prescription of Hydromorphone to get me ready for a Fentanyl patch, and a wrist fusion just six months ago that keeps my hand adhered to the wrist.
Opiates do not work for nerve conditions, and anticonvulsants and antidepressants make me sick and more suicidal. My PT can no longer help me. I keep fit despite the pain, hoping to get back into my beloved mountains and forests that I am bonded to. Fate perhaps led me to your comment when I first opened the blog. There you mentioned John Barnes and your intensive treatment at his facility. Looks exactly what I am looking for. Being very body self aware, I have experienced this myofascial release inadvertently on occasions. I don’t know how long ago you were at his facility. Is it still helping you? And, if you don’t mind, what was the cost for this intensive 2-3 week therapy?