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Metastatic breast cancer: Anyone else?

Breast Cancer | Last Active: Mar 12 3:44pm | Replies (213)
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@zolamiller7

HI I had Breast Cancer in 2008 which was sucessful and it came back in 2019
as MBC-so I have spinal,rib,hip fractures and skull tumors.Have Xgeva
Ibrance,Fasolodex,and 2 others that did not work and am on Ihertu now.
Its hard to find a MBC support group which I would really like as the issues and treatment are different. Have you found one?

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Replies to "HI I had Breast Cancer in 2008 which was sucessful and it came back in 2019..."
windyshores | @windyshores | Jan 2 4:34am

@zolamiller7 have you tried breastcancer.org? There are dedicated threads that are only for those with MBC.

How was yours found/diagnosed?

I hope you find breastcancer.org helpful!

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leighhall | @leighhall | Jan 2 12:32pm

Hi! I have the same problem as you. I had mastectomy in 2014. No radiation or chemo, took tamoxifen about 3 years. It caused too many side affects at work. I started having problems 3 years ago. The doctor checked for heart problems, no checking for cancer even when I told him it didn’t feel like a heart problem. He knew I had breast cancer but never checked for that. Symptoms kept getting worse, went to a different doctor 4 months later & she ran a whole bunch of tests and found Mets to lungs , ribs, spine, hips. I was on Ibrance & Letrozole for over a year & a half until it quit working. They tested me & found out the cancer had a Pik3CA mutation. I am now in a stage 1 clinical trial of a drug that targets it. I have been on it about a month, no side effects yet. Hopefully it works. Only my close family members know about my diagnosis no one to really discuss things with. I don’t want my family to worry about it. Doing ok otherwise.

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