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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6021)

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@johnbishop

Hello Tori @mayamae, Welcome to Connect. I'm really sorry to hear your neuropathy came about from nerve damage during surgery. You are definitely not alone and others may have some things to share also. I shared my neuropathy journey story in another discussion here - https://connect.mayoclinic.org/comment/310341/. My best advice/suggestion that I can share is the one that helped me when I first joined Connect - learn as much as you can about the condition, the symptoms and the various treatments available that might provide some relief. One of the best sources I've found for that task is the Foundation for Peripheral Neuropathy. They have many webinars you can view on their YouTube channel and a good list of complementary and alternative treatments along with the standard treatments used for neuropathy pain. Here are a few of their links:

--- Foundation for Peripheral Neuropathy YouTube Channel: https://www.youtube.com/channel/UCLtOWy1tDeZLdUsMXz_bnfQ.
--- Treatments: https://www.foundationforpn.org/treatments/
--- Living Well with Neuropathy: https://www.foundationforpn.org/living-well/

You mentioned that the gabapentin doesn't help the pain. Have you looked into any complementary or alternative treatments?

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Replies to "Hello Tori @mayamae, Welcome to Connect. I'm really sorry to hear your neuropathy came about from..."

Hello John,

Thank you for the provided resources--I'll look into them. I have not looked into other treatments yet. I have an appointment at the University of Iowa neurology department this Thursday and hope they can give me some guidance.

Tori