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Meet others living with Head & Neck Cancer: Introduce yourself
Head & Neck Cancer | Last Active: Sep 21 5:27pm | Replies (538)Comment receiving replies
Hi Colleen,
I’m hoping you can help me out. I’ve been recently diagnosed with throat cancer, base of tongue, HPV positive. I’ve scheduled an appointment with Dr. Moore for next week for an initial consult. I’m traveling from New York for this appointment and my question is whether or not it would be possible to meet with other members of the team i.e. oncology, chemotherapy, etc…. If you could point me to the right person in the department that would be awesome, I’d just like to make the most of my visit there - and I’d like to get treatment started ASAP.
I’ve had all of the tests run at the hospital in New York and we have a treatment plan ready to go. The reason I’m looking for a second opinion is because I was hoping to have de-escalated version of radiation as opposed to the six or seven weeks that my Dr’s here in NY are proposing.
Replies to "Hi Colleen, I’m hoping you can help me out. I’ve been recently diagnosed with throat cancer,..."
Oh gosh, @rrc185, somehow I'm only seeing this message today. My apologies for the late reply. How did your appointment go with Dr. Moore? Were you able to meet with other members of your cancer team? What is the treatment plan for you?
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Hi, I assume from your message you may have already been to Mayo. If you’re still there, you may want to inquire about the DART 2.0 study. Its purpose is to investigate the efficacy of de-escalated treatment for HPV related cancer. I enrolled but did not have the less treatment option as the cancer was too far advanced. Nevertheless, involvement in the study was valuable. I had proton therapy radiation on both sides of my neck ending in September and have tested cancer free so far. I had very few side effects, these I have so far are manageable. Good luck to you.