← Return to Nebulizer and saline treatment with daily exercise

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@sueinmn

Let me try to answer you in an orderly fashion here...I may have missed your post in the craziness of the holidays - we are only home for 2 weeks, trying to fit everything in, before we head back to our winter place.
NEBS: I replace my neb cups every 2-3 months, usually have 2 in rotation. I have learned here to replace the tubing at the same time. (I usually only neb once a day now.) Here is the one I am using now - I buy 5 at a a time:
https://justnebulizers.com/collections/nebulizer-sets/products/truneb-reusable-sidestream-nebulizer
DISINFECTING: I have a round silicon trivet that fits in the bottom of the saucepan to protect the parts from getting too hot.
ASTHMA/BRONCHIECTASIS: I have both, although the asthma causes me more day-to-day issues with my breathing.
FIGURING IT OUT: Throat clearing & mucus are always an issue. Mine is minimized by: keeping allergies controlled (will not share a recommendation - everyone is different in this respect) and using guaifenesin generic (Mucinex) 600mg long-acting tablets and NAC 600mg(?) twice a day. I currently use the NOW Brand of NAC and have found it reliable. For Guaifenesin or Mucinex, be sure to get it without a decongestant or any other ingredients.
DAILY ROUTINE/VITAMINS: I am a minimalist - I take a calcium/magnesium/zinc supplement. If I am "up North" in the winter, I take a low dose of Vitamin D. I take an Omega-3 supplement to try to protect my heart - long family history. I take Vitamin C & Zinc if I am fighting a respiratory "bug." That's it! No other stuff - my vitamin and mineral levels are tested every couple years by my primary, and are all normal. With a daily multi-vitamin, several were way too high, including 2 B vitamins, so I stopped - haven't noticed any difference. I am vaccinated against everything possible - crucial to me because of my next point.
CONTINUE DOING: Isolation is brutal for me. This holiday season I made it through 2 airports & a flight (masked) two family outings, 3 restaurant meals, church, a little off-peak shopping and numerous family/friend gatherings and so far am healthy. Three years ago, I never thought that could happen again! I do have to say my family - immediate and extended, have always been meticulous about staying home when ill, and notifying others if they get sick right after a gathering. Our close friends are the same way.

I appreciate your thanks. My writing is my way of giving back to this group, who helped me immeasurably when I was diagnosed over 5 years ago, and as I endured treatment for both MAC and Pseudomonas.
Sue

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Replies to "Let me try to answer you in an orderly fashion here...I may have missed your post..."

Sue, I was diagnosed about a year ago for MAC and avoided treatment. I am now ready, but I am really scared. I live in the Asheville NC area. I have been researching. I did have a CT scan that indicates no visible damage in lungs. But I have some fatigue and persistent cough.

What do you recommend, besides the Big # antibiotics?

NAC inhalers?

Hi Sue, I assume you were on the Big 3 for your MAC. Did you have symptoms right away and then started the Big 3 or did your Dr.'s have you wait until you had symptoms? How long did you take the meds and were there any side effects. You have been so helpful and full of so much information. thank you so much. Barbara