Hi Julie and welcome!
I must say you sound like a brave, persevering woman who seems to be at the end of her rope. No matter the diagnosis, day to day chronic pain is absolutely exhausting. Then sprinkle in the kids, spouse, house, job...
there is only so much pushing one person can do. Important to understand when you've reached your limit. I lived and worked through alot as to not let my family, friends, employer, employees down. Ultimately my perseverance was admirable but, at the end of the day I did no favors for anyone including myself.
I eventually consented to short term disability and worked very hard at figuring out my health, having treatments, trying new medications. Thought I could figure it all out during that time and miraculously get fixed. My story was built around eye disease, chronic migraine and cervical/spinal pain. My temporary disability turned permanent and I later was diagnosed with Small Fiber Poly Neuropathy. This, after 3 years of searching, and alot of trial and error, finally made sense of my random wide spread sensations and pains. I used to wake up and feel like Id been hit by train.
I'm truly sorry to hear your story and do relate. My wish for you is that you recognize your needs, demand to be your best advocate (which you deserve), keep pushing Drs to explore or find new doctors like a neurologist, if you haven't already, to rule things out. Being on Connect is a great way to be your own advocate. Research, look and listen. You will find a wealth of knowledge and experience to learn from.
Good luck in your journey and all the best.
Be well.
Rachel
Thank you so much!! I might have to take a break from work after this school year. Until then, I will continue to talk to various doctors, undergo more testing and trying anything I can to get some answers!!