Connect
← Return to Lichen Sclerosus: Any other women dealing with this disease?
Discussion
Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: Jan 1 1:02pm | Replies (326)Comment receiving replies
Mayo Clinic and Vanderbilt both prescribed Tacrolimus cream for mine. I use it every day. I used to use clobetasol propionate, but it didn’t help me much. I still struggle with flares. I have to be careful with some clothes, because many of them trigger flares. My 17 year old niece just got diagnosed with lichen sclerosus, so it must be genetic.
Replies to "Mayo Clinic and Vanderbilt both prescribed Tacrolimus cream for mine. I use it every day. I..."
I have been struggling with LS for two years. My OBGN prescribed clobetesol but it hasn't helped that much. When I saw my demalogist she tried clobetsol for one week and the next week Tacrolimus ointment but Tacrolimus stung. So now I am doing one week of clobetesol and the next week with Pimecrolimus cream. I'm hoping this will work (fingers crossed).
My understanding is that this will never go away. Is that correct? Can it go into remission?
Connect
Would you please expand on what you mean about being careful with some clothes. I was wondering myself if the spandex and other synthetic fabrics in underware and pj's could be a negative . I try to buy 100% cotton pj's but not always easy to find . Sorry to hear about your young niece having to deal with this awful condition too.