I have Sjogren’s, Scleroderma and Reynaud’s Phenomenon

I was prescribed Mycophenolate Mofetil twice daily for two years (high dose (360 mg.) which was hard on my system and stomach. Dose was changed to Mycophenolate Acid (which is an enteric capsule and less senstive to stomach distress). Dose has been reduced to 360 mg. once daily. Both of these meds are the generic version of CellCept. They have had no effect on saliva production. I’ll continue on latter dose until blood work indicates it’s not effective at reducing the inflammation from these diseases. I tried Civemeline for two years: no effect on saliva production. My mouth is a desert and as any one with these diseases knows, it’s more than awful, it’s horrific. Cannot talk without water, difficult to swallow, effect on teeth and gums is a serious issue though I’m fastidious about dental care. I have lost taste and smell as a result of these diseases and the dry mouth aggravates the condition dramatically I use Biotene dry mouth moisturizing spray as a fallback. Am currently experimenting with Aquoral artificial saliva protective oral spray (it was featured in one of the Sjogren’s magazines). Too early to give an opinion. It just lubricates the mouth but doesn’t cause the production of natural saliva. I saw a referral by someone on this site to a product called SaliPen billed as a high-tech mouth moistener. I ordered recently and am using in the HOPE that it will stimulate my salivary glandsmay take up to 8 months according to User Guide. It’s an electrical salivary stimulator system. It’s for use in patients with Xerostomia (dry mouth). Other than these options, I pray that I can be a candidate for Stem Cell therapy.

Hydroxychloroqin didn't work for me