@rwr, and everyone, I'm a total newbie here with this, and shocked and scared. I also have celiac disease, pernicious anemia, and undifferentiated connective tissue disease.
So, on to business: December 8th had terrible pain in chest and upper right abdomen and back. Went to hospital by ambulance admitted for 3 days. Spiked a fever, liver enzymes and blood values all wonky, checked for every disease I could think of and more. I was scanned upside and down. Ended up saying I had a bacterial infection, unknown location, unknown cause. After lots of IV antibiotics followed by oral at home, liver enzymes still elevated but lower. A recurrence of the pain increase liver enzymes again but not as high. I've had no alcohol or Tylenol as instructed since early December, liver enzymes still high. Another MRI showed probable IPMN about 1 cm in pancreas, continued cyst in liver 4+ cm, many small gallstones.
Incidental finding of mild scarring in lungs and granuloma. To have CT scan in the summer.
My greatest concern is assist in the pancreas because it seems to be the kind that can become malignant. I would like to get these things followed up on as soon as possible, but my doctor has been on vacation so since getting the news last Friday I am still waiting as of New Year's Day for anyone to even look at the results, despite the APRN telling me she would call back on Friday.
Have heard nothing so I'm waiting
Where to begin? How to find the right specialist or surgeon? Do I need to get more opinions from other entities? I live near and go to a teaching hospital associated with a major ivy League University, Yale New Haven Health. There are other choices within reasonable driving distance.
I guess the next thing is an appointment with primary care. What do you think?