This is so hard when a young person has this. My daughter in her 30's had a sarcoma, phyllodes tumor, in a breast. The rarity of it means little research has been done. I send my best wishes for you and for her.

I was diagnosed with leiomyosarcoma several months ago. Grade 4. It is sad for this to happen to a young person. I can tell you what helped me. When I got the news that it was such a rare cancer confirmed by Mayo Clinic. I went to bed & cried. I then realized that that would not work. I would need to have a positive attitude & positive thoughts. I asked for prayers from those that were so inclined & positive thoughts from others. I designed a mean looking cartoon character I named Chemo Carl to fight the cancer. He is an English Bulldog wearing a pink cape & pink boxing gloves. I tell him to get in there & beat the crap out of the cancer cells. I am a religious person so I depend on Jesus to help me through this. My Oncologist & the infusion nurses are thrilled with my attitude. Guess what! My third scan showed tht the cancer had been contained & had not spread. I have my forth scan the 30th. I am looking forward to more good news! I hope this helps.

Hi @janezum, I think @danielad may have some experience to share with you. Her grandson also had a diagnosis of osteosarcoma.

@nanee1, I love that you designed Chemo Carl. I wonder if you would mind posting a picture of him. I bet it would inspire Jane's God-daughter.

Jane, how is your God-daughter doing? What treatments will she have?