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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 6 hours ago | Replies (585)Comment receiving replies
Replies to "Yes we finally got the ok to come back in a month for the first time..."
Getting your husband’s “leash” lengthened between followup appts is a really positive sign! It can feel a little scary at first though too! You get so used to every week or every 2 week visits so when you don’t have to return for a month it just feels weird! Conversely, don’t feel like it’s backsliding if there are times when he needs to return more frequently. I still have that happen occasionally. If there is an anomaly in bloodwork, my 3 month window will return to monthly visits just to monitor. That’s happened several times over the past 4+ years. I felt a little defeated the first time but then realized it’s no biggie. Just the doctor being able to spot trends in the blood work.
Most likely, it won’t be long before your husband has the Hickman removed as his appointments get further apart. It’s so nice to have it in place for infusions and blood draws, but the weekly dressing changes get a bit tedious. I was offered the option for instructions and supplies to change the dressing at home. My husband was pretty adamant that it wasn’t going to be an option! 😅 He’s solid as my caregiver but drew the line a changing that dressing.
Happy New Year…now, if I can remember to write 2014. 😁