Stage 4 Metatasized to Bones- Anyone at 10 years?

Posted by cal77 @cal77, Dec 30, 2023

For an otherwise healthy male, are there those of you that are still around for 10 years? I'm recently diagnosed and at 7 months...my Urologist said I have maybe 4 years, but then I see others out there are still around at 10 years...Is everyone different?

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30 months ago my surgeon told me that I had 4-5 years, his department head said that I had 10 years. I think that it is an educated guess for guys with CR aggressive cancer, like me. Some doctors are more conservative than others. Furthermore, no patient or their family, will complain to their doctor that they are living longer than the projection. Hence, make your plans for the conservative projection and hope for the longer projection. Ten years is a home run, more than that is a home run with 2-3 guys on base, but I am thinking that I probably have a year or so longer than the conservative projection ( Gleason 9, CR, aggressive, advanced stage 3C).

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Change urologist, why are you even going to urologist you gotta be seeing oncologist ! Fully metastasized from head to toe 2008. Hello I’m still here. They called me the Christmas tree at Cedars. I was sold it up. They also told me I would die but maybe God doesn’t listen to them. In any event, enjoy your life to the fullest. You got many many more years in front of you with all the new research I won’t worry too much about it you’ll probably die or something else.

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Everyone IS different. My husband is 14 yrs out from diagnosis. Metastasis to bones started a few years ago. Oral chemo worked for about 18 months. He had decided he would not go thru conventional chemo. I have supported him in that decision even though it could add several years to his life. Quality of life is more important. (This is my 2nd journey with a husband with prostate cancer. My ex had it 30+ yrs ago.) I can assure you that new treatments & medications are being developed all the time. Even in the 14 years of my husband’s journey we are finding new treatments that weren’t available a few years ago. At time of his original diagnosis he also was given 4-5 years. Or more correctly we were told that’s the “average” time from diagnosis to demise. It is a wake up call to get life in order & decide how to spend remaining years. But many exceed that number of years. Don’t give up hope!

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@coping123

Everyone IS different. My husband is 14 yrs out from diagnosis. Metastasis to bones started a few years ago. Oral chemo worked for about 18 months. He had decided he would not go thru conventional chemo. I have supported him in that decision even though it could add several years to his life. Quality of life is more important. (This is my 2nd journey with a husband with prostate cancer. My ex had it 30+ yrs ago.) I can assure you that new treatments & medications are being developed all the time. Even in the 14 years of my husband’s journey we are finding new treatments that weren’t available a few years ago. At time of his original diagnosis he also was given 4-5 years. Or more correctly we were told that’s the “average” time from diagnosis to demise. It is a wake up call to get life in order & decide how to spend remaining years. But many exceed that number of years. Don’t give up hope!

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Thanks for giving me hope.

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@eugenelapietra1

Change urologist, why are you even going to urologist you gotta be seeing oncologist ! Fully metastasized from head to toe 2008. Hello I’m still here. They called me the Christmas tree at Cedars. I was sold it up. They also told me I would die but maybe God doesn’t listen to them. In any event, enjoy your life to the fullest. You got many many more years in front of you with all the new research I won’t worry too much about it you’ll probably die or something else.

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Thanks and glad to hear you are doing okay for so many years. I asked about an Oncologist, but the Urologist said not at this time. I am just getting the Eligard shot every 4 months, and take the Apalutamide every day..

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Stage 4a 20 yrs ago. Surgery then PSA recurred and stated lupron, for all this time with bony Mets for 8 yrs and have had every treatment possible. Different hormones, chem, stereotactic radiation, provenge, denosumab, radium 223 and now Pluvicto along with zolodex. Long story but >20 yrs and still fighting the fight. We all have different disease despite the same diagnosis.

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@cal77

Thanks and glad to hear you are doing okay for so many years. I asked about an Oncologist, but the Urologist said not at this time. I am just getting the Eligard shot every 4 months, and take the Apalutamide every day..

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Just for shits and giggles see an oncologist ,what harm would it do?

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@greglynch7

Stage 4a 20 yrs ago. Surgery then PSA recurred and stated lupron, for all this time with bony Mets for 8 yrs and have had every treatment possible. Different hormones, chem, stereotactic radiation, provenge, denosumab, radium 223 and now Pluvicto along with zolodex. Long story but >20 yrs and still fighting the fight. We all have different disease despite the same diagnosis.

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Our journeys sound very similar

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@coping123

Everyone IS different. My husband is 14 yrs out from diagnosis. Metastasis to bones started a few years ago. Oral chemo worked for about 18 months. He had decided he would not go thru conventional chemo. I have supported him in that decision even though it could add several years to his life. Quality of life is more important. (This is my 2nd journey with a husband with prostate cancer. My ex had it 30+ yrs ago.) I can assure you that new treatments & medications are being developed all the time. Even in the 14 years of my husband’s journey we are finding new treatments that weren’t available a few years ago. At time of his original diagnosis he also was given 4-5 years. Or more correctly we were told that’s the “average” time from diagnosis to demise. It is a wake up call to get life in order & decide how to spend remaining years. But many exceed that number of years. Don’t give up hope!

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Well put... Never give up!!!!

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@coping123

Everyone IS different. My husband is 14 yrs out from diagnosis. Metastasis to bones started a few years ago. Oral chemo worked for about 18 months. He had decided he would not go thru conventional chemo. I have supported him in that decision even though it could add several years to his life. Quality of life is more important. (This is my 2nd journey with a husband with prostate cancer. My ex had it 30+ yrs ago.) I can assure you that new treatments & medications are being developed all the time. Even in the 14 years of my husband’s journey we are finding new treatments that weren’t available a few years ago. At time of his original diagnosis he also was given 4-5 years. Or more correctly we were told that’s the “average” time from diagnosis to demise. It is a wake up call to get life in order & decide how to spend remaining years. But many exceed that number of years. Don’t give up hope!

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thanks coping 123 that is a good message and attitude I will keep it in mind

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