Connect
Discussion
Comment receiving replies
Replies to "I have rheumatoid arthritis and have infusions of Actemra every 4 weeks. It has really helped..."
Autoimmune Diseases | Last Active: Mar 2 5:11pm | Replies (16)
Comment receiving replies
I have rheumatoid arthritis and have infusions of Actemra every 4 weeks. It has really helped me. My rheumy said he is considering possible changing the frequency. Interesting what you experienced by changing. Hmmm... curious what my doc will do.
Replies to "I have rheumatoid arthritis and have infusions of Actemra every 4 weeks. It has really helped..."
Connect
I'm currently doing Actemra infusions every 4 weeks. I have had unplanned "interuptions" of Actemra. Once was a 6 month interruption when Actemra was in short supply and existing supplies were being diverted to seriously ill covid patients. Things didn't go so well for me. I didn't mind but I needed to take prednisone again.
My rhematologist was reluctant to change anything after the supply of Actemra was restored. I easily tapered off prednisone again. I have been on Actemra for 4 years without any major difficulties.
Starting in 2024, I will be trying infusions every 5 weeks instead of every 4 weeks. My rheumatologist isn't so sure how it will work out but thinks it is worth a try. There is no plan to stop Actemra completely anytime soon.